The purpose of this workshop is to identify the Ethical, Legal and Social Implications (ELSI) challenges raised by Citizen Science in the context of biomedical research and identify ways for the National Institutes of Health (NIH) to address these ELSI issues. The term “biomedical” is used in the broadest sense to include a wide range of research related to the NIH mission: biological, biomedical, behavioral, social, environmental and clinical studies that relate to understanding health and disease.
Watch it live: Tuesday, January 13th at 8:30 a.m.
- To identify prominent ELSI issues associated with various types of Citizen Science research projects (for consideration by NIH policymakers and for use by investigators leading such projects).
- To identify gaps in ELSI research on Citizen Science relevant to NIH’s mission.
- To plan for continued, expanded engagement of Citizen Science and bioethics communities to further develop criteria and guidance for NIH Citizen Science research activities.
Follow the workshop broadcast live at GenomeTV or on Twitter via #CitSciELSI
View the Agenda for the Workshop
The National Human Genome Research Institute’s (NHGRI) Ethical, Legal and Social Implications (ELSI) Research Program was established in 1990 as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal and social implications of genetic and genomic research for individuals, families and communities. The ELSI Research Program funds and manages studies, and supports workshops, research consortia and policy conferences related to these topics.